And then I feel my stomach -- oh shoot there really are 2 holes.
I rub my head -- yup I am bad.
Nope -- not a dream!
I lay there for about 5 minutes and feel sorry for myself, still not believing that I really have cancer, that I really am doing chemo, that at least twice a week I let my mind wander and start measuring my life in statistical chances of survival.
And then I try to think about all of the good that I have seen during the last 3 months.
Yesterday marked 3 months since my initial surgery. Seems like a lifetime ago and yet it could have just been yesterday. I was at my chemo Dr. today and we were talking about doing genetic testing. She told me that the average woman has a 1% chance of getting ovarian cancer. 1 PERCENT!?!?! Are you kidding me? If I am going to be the 1% winner why couldn't be outcome become a cruise or a $100 cash or even 2 movie tickets?
I'm really not feeling sorry for myself, I just keep thinking that after 3 months I would be able to completely accept the reality of what I am facing.
I don't go out much -- other than to Dr. appointments, a track meet or to Sacrament meeting. And when I do, someone is usually home to help me decide what to wear or I just wear something that has already had the "Dave or Lauren and Kenzi approval." I know, I'm 45 and I'm a big girl I should be able to dress myself, but no matter what I have on, it just doesn't look like "me." I'm bald, I slouch, my clothes fit differently... mostly I'm bald.
On Sunday when I got ready to go to Sacrament meeting everyone was already at church and I wanted to wear my new hat Sue gave me at chemo. I've never worn it before and hadn't decided what outfits it looked good with. I finally decided on one but wasn't sure. So I took a picture of myself in the mirror, text'd Dave and asked him if I looked ok. Yes I really did text my husband a picture of me during church to get his approval. I already know -- I'm worse than a teenager. Dave didn't read his text and it was time to go to church. Being the brave person I am I went -- without any prior approval. Apparently I looked ok cause I got lots of compliments (who really would come up to bald chemo woman at church and say my hat and outfit looked silly?).
After 3 months, in simple words what have I learned?
- I have great family, I have great friends.
- Faith and hope and patience and gratitude are closely tied.
- Even as an adult I'm really insecure.
- I don't like pain, but I can survive even with a lot of pain.
- No one can really prep you for how tough -- tough things really will be -- you just have to face them. I thought I had a pretty good idea of how hard the surgery and chemo would be. How I would feel physically and emotionally. Wow, not even close! Roxanne and Dave kind of tried to forewarn me about this, but it was something I had to experience on my own. And although I feel like at times I've hit the lowest of lows, I can look back during the higher times and see that there is hope. I can do it.
- Music is very calming and there is nothing good on TV.
- Little things make all the difference in the world.
- People are just good. And people are soooo giving!!!!!!!!!! I am surrounded by so many good people.
- If there is going to be a chance of something going weird it will happen to me.
- Scriptures can bring such great comfort. Scriptures and conference talks take on different meaning at different times in your life.
- Everyone has trials. I have many friends and families that are facing different, but equally as challenging things right now.
- Laughing and crying both hurt a damaged stomach, but laughter doesn't leave you with a headache.
- Doctors and nurses and caregivers are amazing.
- Self-pity is ok in very short doses, only if followed by something positive.
- Positive books, positive music, positive thoughts are a must -- I have to surround myself with positive.
- You can have good times and good memories and good things happen, even amidst really bad times with bad memories and bad things happening.
- It is super easy to fall into mundane, unimportant worries and desires -- even when you are facing something that gives you a reality check.
- Control -- what is control? I have none. And that is ok if I put the control in Heavenly Father's hands.
- For me and my family openness, honesty (even if it isn't pretty or what you want to hear) and humor about "not great things" works.
- Life goes on -- with or without me. This is as it should be. Dave and I have said that although our sweet little family is facing a very daunting trial, on a daily basis things really have changed. Different people drive them places, Dad takes care of them more, some priorities have changed for us. But their day-to-day activities and life as they know it has not been as monumentally impacted as I would have thought.
1 comment:
You are an amazing woman, Steph. Seriously. I love you! You are such a great example. Everyone needs an aunt like you.
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