In the cancer world NED means "No Evidence of Disease."
As of yesterday I am officially NED!!!!!
Yesterday I had my first CT Scan since chemo ended and it looked clean -- no sign of any tumors. My CA 125 was 7 -- normal is anything under 35. (I started out at 800.)
Unfortunately with Ovarian, and many other cancers, they will never say I am cured or there is evidence of no disease.
But for now NED is the best I can ask for. Depending on what happens with my clinical trial I will have blood tested and Dr. visits every couple of months for the next year. I know from talking to others the anxiety of being tested and waiting for results is not going to be easy.
I have to just forget the statistics. I have to be careful about what I read. I just need to live a happy, healthy and fulfilling life.
I met a lady with was given 1% chance of surviving and it has been 10 years. She has lived to see the birth of several grand kids. I met another lady who was told she had a 90-95% chance of her cancer never coming back and unfortunately a few years later it is back in another spot and she is fighting again.
I hate Dave's "you could get hit by a bus tomorrow" analogy -- but it is true. Before cancer I never knew from day to day if I would live or die -- but I never thought twice about it. Now I think about it at least twice a day.
But for now as my cancer friends say "I am dancing with NED." If I were dancing with Tim, Matt or Kevin, Dave might not be too happy, but NED -- Dave is ok with that.
5 comments:
Awesome news! YAY! You continue to inspire me---you are amazing. Love you!
Doing the happy dance too!!!
I'm going to start calling you Ned. :)
So happy for you!!!!
I found you. NED sounds like a great dance partner.
I wouldn't just dance with NED, I would totally date him!
So happy to hear this news.
Love ya.
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